I try so hard to be positive but there are times when I just can’t manage it. In fact, I think often times it is just a cover: I plaster a smile on my face and pretend that I am really doing better than I am. But today the floodgates have opened and I am crying. My fibromyalgia pain is through the roof and there is no point in pretending I am okay, because I am not. I just am not. I am pretty much non-functional and I have been that way for a while. Pain and unrelenting mind-boggling fatigue. I never even knew it was possible to feel this much fatigue. Imagine not sleeping for a year, that is how bad it feels. My pain is from the top of my head to my very toes. Aching, sharp pains and muscle spasms.
Imagine trying to type a simple post like this. It takes forever. My brain is in a fog all the time, I can’t remember how to spell, forget grammar as well. My hand co-ordination is horrible. My eye-sight is fuzzy even with new glasses and magnifying the page. It is the way you see when you have not slept..
Imagine being home bound because you can’t drive anymore without having accidents. I use the dial-a-ride service for the disabled. But when I go out I can’t enjoy myself. A simple shopping trip is torture. I use a cane because my balance is off. I once broke my knee in a fall. My muscles feel incredibly weak and heavy. I go to Walmart and first I go to the in-store McDonalds and treat myself. Then I slowly make my way around the store. I have to take breaks and sit down. It is especially trying if I need to get stuff from both sides of the store.
I used to enjoy browsing, now I can’t do it. I need new clothes and the thought of having to look and try them on is overwhelming.
It may take several days to recover from my shopping. The pain and fatigue is always worse afterwards.
All I can say is if you have good health, treasure it! I am 50 years old going on 90.
Needless to say this is not conducive to good mental health. For a long time before I got sick and when I was working at the mental health social center I thought I would never be depressed again. Never say never I guess.
Conventional medicine has no answers for this except medication. I am already on a ton of medication for bipolar disorder. Some of the medications I take actually are used to treat fibromyalgia as well as they are supposed to reduce nerve pain. But they don’t work for me.
Another option is addictive pain killers. No thanks, I already got in trouble with sleeping pills and tranquilizers years back. Besides one of the insidious affects of pain pills is that your body can get used to them and they are not as effective. So the dose has to be raised. This leads to addiction but that is not all. I have read comments on online forums from people with fibromyalgia where they say that they keep having to be put on harder and harder drugs to get relief, but there obviously is a limit to how big a dose you can get without killing yourself. What ends up happening is that they run out of options, even the strongest ones don’t work anymore.
Now I will say that everyone reacts to medications differently so not everyone has this problem. But the operative word here is “tolerance” People who get addicted to medications when their bodies process medications differently than other people. I have already had that experience with tranquilizers and sleeping pills where the effects wore off and the doctor just kept raising the dosage. After a while I was in a constant state of withdrawal and started to abuse them both.
By the way a good doctor will monitor a patient for signs of tolerance. Mine didn’t. I just thought my symptoms were getting worse. I had never done drugs in my life and so it never occurred to me that I could become an addict.
So…what are my options? I can’t go on this way, that is for sure. Truth be told, many times I do not want to live anymore. But I am not going to take that road again. I have hurt people before with my suicide attempts and I am not going to do that again. But there are times when I pray for God to take me. Since I am still here I guess I know what the answer is.
I am going to do some research online on using meditation for pain management. I have not thought too much about it because frankly, it is pretty difficult to meditate when you are in pain. But since I keep seeing headlines that say that meditation helps then maybe I should look more closely. Maybe it is a different method than what I have tried before.
I just want to get functional again and maybe even have a little joy in my life. I may never get the life back that I used to have, but I just need to stop this black hole that is eating me alive.